Original Story from Ava's Mom:
“When she was 3 years-oldv, Ava developed a limp in her right leg for several weeks. At first, we thought she fractured her leg, so we brought her to an urgent care for x-rays. They told us everything looked fine, but I knew in my heart that there was something more sinister happening. So, I set up an appointment with an orthopedic specialist, and when they saw her x-ray they realized something was wrong. After an emergency MRI that day, a biopsy of her leg the next morning, and an eventual discovery of her primary kidney tumor, we were told that she had stage IV high-risk neuroblastoma that had spread to her pelvis, right leg, spinal column, skull, and all throughout her midsection.
Ava was first treated with 6 rounds of chemo, 9 surgeries, a bone marrow transplant, radiation, and 5 rounds of antibody therapy. During treatment, she developed pneumonia with a collapsed lung; she needed chest tubes placed and also IV nutrition (TPN) for 3 months, plus countless blood/platelet transfusions. Because of her chemo, she now has permanent hearing loss. For 15 months, Ava was declared NED (to have no evidence of disease), until she had a relapse in her skull. She needed extensive, specialized treatment at Sloan Kettering, including MIBG targeted radiation, surgery, and eventually the hu3f8 antibody that Band of Parents funded. She is currently enrolled in the Bivalent Vaccine clinical trial to hopefully keep her disease-free.
Ava loves to play with her American Girl Dolls, dance, do any kind of art, and tumble. She loves to swim and go camping and knows every Taylor Swift song by heart. Ava is incredibly brave. When she was first diagnosed she told us “I am strong, I am brave and I can do hard things”. – Jen Manwaring, Ava’s Mom
100% of all Little Adventures proceeds from the first 1000 Princess Ava Dresses will be given to Ava & her family to help with the cost of treatments and medical bills. Little Adventures takes pride in knowing that all of our dress ups are comfortable, washable and guaranteed. Kids love our dress ups because they are not itchy or scratchy. Parents love them because they can let their kids be kids when they are playing in them. If they get dirty you simply have your child take the outfit off (if you can get them to take it off) and throw it in the washer just like any other piece of clothing. When it comes out your little one is off on the run again to a world of make believe.
It has been a pleasure to work with Ava as we do what we can to fight Childhood Cancer. Please join us by purchasing one of our hight quality dresses for you little one.